Posted by: Lynn Yarbrough ®
01/17/2003, 21:21:52
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It sounds like you have some experience with what we are going through in a somewhat different form. I think it's important at this stage for you not to fear BEB, as it may not emerge and at any rate is a lot easier than SD in terms of discomfort. If the BEB gets a LOT worse, you may at some point need to adjust to not driving, and that's a major freedom to have to give up. Still, after 40 years with BEB, I currently drive normally 11 months out of 12 with the aid of Botox, and I know that if the Botox were taken away from me, I would be functionally blind very shortly. (It was not always that easy: my wife drove the two of us to the hospital to have our second child -- the labor pains were easier to deal with than the BEB spasms.)With regard to the drugs, you would be wiser to lay off the caffiene (I use Tylenol myself, but mostly because I am on a blood-thinner regimen and Aspirin and Advil, both thinning agents, are bad for me) but you may be too young for caffiene to be any threat to you. But in general the interplay among different drugs gets too complicated for me to keep track of, so I keep mine to a minimum when I can. Cheers, --- Lynn
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Posted by: Kathy in Oregon ®
01/18/2003, 10:43:40
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Kathy, if you are noticing a correlation between the caffeine and twitches i would cut down on the excedrin, it does have alot of caffeine in it!! which also wipes out the B vitamins in your body. You could also try taking a B vitamin supplement and seeing if that helps with the twitching. i break out in hives if my caffeine intake is too high, whether it be from coffee, chocolate, tea,anything.
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Posted by: Delaine Inman ®
01/18/2003, 12:18:31
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Caffeine can help and cause a headache. Those of us who have a cup a day know that if we don't get our morning cup we have a terrible headache and will for several days until we withdraw from the caffeine. There has been some national news this past week about rebound headaches. Any pain reliever on a regular basis even over the counter things can cause rebound headaches. Our pain receptors get use to it, our blood vessels and body become accustomed to having it and if we don't get it in our system we get a headache and need another Excedrin or whatever we've been taking.
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Posted by: Kelly Saffell ®
01/18/2003, 18:12:49
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I find that my spasms are worse with caffeine so I stay away from it most of the time. My husband takes Exedrin at times for headaches and has gotten some massive bruises because of it. (He is an RN and knows better, but has done it anyway) I have beb/meige and have TMJ since I involuntarily clench my jaw alot. I sleep in a nightguard and see the specialist regularly to adjust the mouthpiece and keep pressure off of the joint when I sleep. The headaches associated with TMJ are some of the worst I have ever had so I can definitely sympathize with you there.
Kelly in Dallas
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