Posted by: lince ®
07/29/2003, 08:31:51
Author Profile Mail author
|
Would you explain a little more? I have had the blinkies for about 25 years, on and off, and I would like more info. How long did it take for you to notice the effects? why was such a medicine prescribed? are you blinking less? is it completely unoticeable??
Thanks
|
Posted by: Alex .South Africa ®
07/30/2003, 02:03:25
Author Profile Mail author
|
The Zyprexa was prescribed by a neurologist,I don't know how it works but I am completely free of the blinks.It too about two weeks for me to notice the effects.It is completely unoticeable.
I was concerned about dangerous side effects listed for Zyprexa but was told that the risk was minor at such a low dose.I have experienced none apart from morning lethargy.
|
Posted by: lince ®
07/30/2003, 08:51:37
Author Profile Mail author
|
and how did he come up with prescribing you this medicine?, their site says it is olanzapine. did you have any other 'disorders'. (i do not know if it is related, but I have mitral valve prolape) I have had this come and go since i was rather young, and would get worst when school time began etc... but that was some twentysome years ago and lately it stays longer and longer. Currently I am trying magnesium, and helps a lot, but it stills bothers me a bit.
How did your neurologist came up with this for you? Please tell me the complete story, since i have also had this for more than 20 years.
tks
|
Posted by: Alex .South Africa ®
07/31/2003, 12:47:44
Author Profile Mail author
|
Hi Lince
I am not sure why the doc prescribed Zyprexa, and don't know quite how it works. I suffered from the age of 11, went through eye drops, glasses, alcohol for many years. Finally found the internet, which lead me to a neurologist who tried Botox. Apart from freezing my face, no positive result.He then put me on Zyprexa 2.5mg, which has worked for me. There are some side-effects to be considered, but apart from the morning lethargy, I have not expreienced any others. I hope this has been of use to you. Good luck!
Alex
|
Posted by: Joyce in NC ®
07/29/2003, 08:31:52
Author Profile Mail author
|
Alex, when do you take this medicine? at night? does it have another name. I live in the US and it might not have the same name here.Joyce in North Carolina always searching for anything that might help this "dang thang" I live in the South we talk different.
|
Posted by: Alex .South Africa ®
07/30/2003, 02:10:24
Author Profile Mail author
|
Hi Joyce
I take 2.5mg at night ,I don't know of another name for itbut I am pretty sure it is available in the states.It has worked for me but treat it with caution.
Good luck and by the we also talk different here in SA
|
Posted by: June in Toronto ®
07/29/2003, 11:04:45
Author Profile Mail author
|
Thats great to hear Alex - would like to know more about Zyprexa. Thanks for sharing your good news.June in Toronto
|
Posted by: rita ®
07/29/2003, 12:28:11
Author Profile Mail author
|
Hi Alex
What wonderful news.
I myself am in some sort of remission and don't know why..
Isn't it the most wonderful feeling to have it go away.and you suffered much longer than me..God Bless Rita in Washington State.
|
Posted by: Mary, upstateNY ®
07/29/2003, 13:16:42
Author Profile Mail author
|
Alex - How wonderful!! I hope the researchers take notice of this and act on it soon. And I hope you enjoy a happy life w/o the BEB! Mary
|
Posted by: Virginia ®
07/29/2003, 17:00:43
Author Profile Mail author
|
I'm truly glad that you have found something that works for you. Zyprexa is one of the anti-psychotics that list tardive dyskinesia as a possible side effect, so it probably isn't for everyone. Virginia in AL
|
Posted by: Keith_P ®
07/30/2003, 09:39:16
Author Profile Mail author
|
Hi Alex!
Great news! My BEB has been rather quite too thank the Lord!
Haven't had any major problems in a month or so!
By the way my wife is South African from J-BURG. Where are you from?
We just visited in Jan. Went to Cape Town and stayed in her town also in J-BURG.
|
Posted by: Alex .South Africa ®
07/31/2003, 12:41:15
Author Profile Mail author
|
Hi Keith
Nice to hear from you. I'm from Pietermaritzburg originally, but living in Cape Town now. Good to know you have a South African connection! Keep in touch.
Alex
|
Posted by: Delaine Inman in TN ®
07/30/2003, 19:13:47
Author Profile Mail author
|
Olanzapine is another name for Zyprexa. It affects the levels of Seratonin and Dopamine in the brain. It was approved for schizophrenia in 1986 and then has been used for bipolar disorder(manic-depressive). It helps the manic stages. It comes in 2.5mg all the way to 10mg tabs and dosage depends on the severity of the symptoms. Most are improved with 10mg at night. Info can be found at several sites on the internet by typing in either name. I can see where the lowest dose was ordered. Some might even try less especially in the beginning. Thanks for sharing your good news.
|
Posted by: Beth ®
08/01/2003, 20:40:59
Author Profile Mail author
|
I would encourge all to discuss this thoroughly with their doctor before jumping on the zyprexa bandwagon. This drug has some nasty side effects. People with BEB were the ones to test the safety and effectivness of botox. Hopefully if others to try this they will share the results with the rest of us.
|
Posted by: Delaine Inman in TN ®
08/02/2003, 22:10:30
Author Profile Mail author
|
We all know how crazy this disorder is and how one thing may work for a few and not help anyone else, but since it is so crazy anything that works for one is worth a try to see if it works for you if nothing else is working well. Every medication under the sun has potential side effects, each person is different and should start with an open minded doctor who will work with you at the lowest possible dose of anything and educate yourself and monitor the side effects with professional help if needed. Sharing what works and doesn't is what makes the BB support so great. My Botox wasn't working at all and surgery didn't help it very much. I begged for Klonopin from several doctors in the big city of Nashville experts and was told I'd hate it because of the side effects. They were wrong. I finally found neurologist here in my small home town who gave me the chance to try it. I had to cut the dose down and take it more often, but it made a huge difference in my life. I had to play with the dose and the time and listen to my body and symptoms. Adding the Piracetam I heard about on the BB that is not FDA approved here in the USA made things even better. The Botox works better and the Botox makes the meds work better, so everything together has been the combination that has given me back my life. I was hoping it was all Klonopin and Piracetam, but when the Botox wore off completely I didn't do as well. I need the Botox every 2 months in a low dose to make the other 2 drugs work and vice versa. It took 4 years and many doctors to get me to this point. We need to hear about everything that works so we have the opportunity to make choices and try new things to find the thing that works for us.
Thanks for sharing anything. You never know what a difference it can make even in one person's life.
|
Posted by: Moderator-JB ®
08/03/2003, 10:57:27
Author Profile Mail author
|
Delaine & All,Klonopin(Clonazepam), makes the difference between my body looking somewhat normal vs. spazzing and taking on a rather bizarre animated look (especially when I'm in a restaurant). Neurontin helps me.
If you start taking a drug and within a short time you get worse, stop it immediately. Usually I know within a week. We all react differently. Everyone have a GREAT day, Judy in Washington
Modified by Moderator-JB at Mon, Aug 04, 2003, 17:49:54
|
Posted by: Z L Smith ®
08/03/2003, 20:37:41
Author Profile Mail author
|
AlexI am so glad to hear your wonderful information. I will call my dr in the morning and see if he thinks it could work for me. I do not like the botox injections, I always bruise and have droopy eyelid.
Thank you so much,
Zoe Smith
|
Posted by: Delaine Inman in TN ®
08/04/2003, 10:18:20
Author Profile Mail author
|
Bruising can be made worse by aspirin or anything that thins the blood, too large a needle, & poor technique. Drooping is usually wrong placement of Botox. Applying ice and pressure can reduce bruising. Talk to your doctor and it they aren't willing to make some changes then you need to change doctors.
|
|
