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| Botox vs. Myclo-something |  | ||
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Posted by: Bob in Tomahawk ® 11/27/2008, 10:30:23 |
I got my shots yesterday and my Doc. changed from botox to myclo. I drove partway home but the oncoming Holiday traffic soon got to me as my eyes are [at this point very light sensitive] who can tell me what this myclo.is? Today my eyes are wide open and smiling but still very light sensitive, will this sensitivity wear off after a while? Thanks in advance Bob |
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Posted by: pdb ® 11/27/2008, 11:11:26 |
Myobloc is botulinum toxin type B. Types A and B are the ones used for dystonia correction. Type A is Botox in the US and additional brands elsewhere. The main reason people get Myobloc rather than Botox is in a circumstance where Botox is ineffective. That can occur because it just doesn't work for some people, or because a small group of people develop anti-toxins to Botox and over time it becomes ineffective. I am on Myobloc at the moment. Going on to Myobloc for a period of time gives one a Botox "holiday" that lets the anti-toxins if any go away. The key differences between the two are: * their molecular structure is different and they diffuse (spread from the injection site) differently. Not necessarily an issue - accuracy of injecting is more important. * Myobloc seems to become effective more rapidly than Botox (well, that's my experience - good improvement in a day or two - for me more like 10 days with Botox). * Myobloc does not stay effective as long - papers at the last BEBRF conference showed research on that, my doctor warned me about it, and my experience is that it becomes ineffective within 6 weeks. * Myobloc's side effects are similar to Botox, but with some variations. For example, for a few days dry eye gets worse than it does with Botox. That eases off to whatever one's "normal" dry eye is shortly after. Some dry mouth is apparently common. I can vouch for that, though for me fortunately it's not particularly bothering. * I've not heard of or experienced any difference in light sensitivity compared with Botox. * Risk of ptosis seems similar * It has a reputation for being more painful to inject. I had no pain the first time I had it, but definitely more of a sting than Botox the second time, so some of this may also be injection site and technique related. But Myobloc's pH is higher, and that's alleged to be the reason for the increased stinging. * A unit of Myobloc is not equivalent to a unit of Botox - the ratio is between 40 and 50 to 1, i.e. if one gets say 50 units of Botox, the equivalent amount of Myobloc for is likely to be 2000 to 2500 Myobloc units. I posted previously on my experience with Myobloc. The link below will take you to that posting. Cheers Peter Related link: http://www.blepharospasm.org/forums/beb/posts/64117.html |
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Posted by: Steve Blacksher ® 04/13/2009, 18:00:28 |
Peter, I have been receiving myobloc for my bleph but United Health care has now denied coverage saying there is no clinical evidence of peer-reviewed literature that supports its use. I developed anti-bodies to type A about 1 1/2 years ago and it became ineffective. Do you know of any such studies that I could use or where to go to find some? Thanks, Steve in Colorado |
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Posted by: pdb ® 04/13/2009, 20:43:36 |
Hi Steve, I've just sent out a query on this, to a doctor that injects Mybobloc. Hopefully he will reply, and with something useful. Peter |
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Posted by: Anita in Ohio ® 12/01/2008, 14:25:45 |
Bob, I have used both Botox and Myobloc. I don't need to explain anymore about the two since Peter has more or less filled you in. I did very well in the beginning with Myobloc and the eyes felt very normal, but did have to go back to the Botox. I would rather focus on your light sensitivity (Photophobia) There may be times it might feel better and yet it may never. You might say "what am I trying to tell you?" Okay, let's try some gray or rose color glasses known as FL41 that will help with the light. You can wear the wrap around glasses either alone or over prescription glasses. This does not cure the problem. Try using a cap or a hat with a brim. In the car, I (had to not be a shame to try this) use baby shades that pulled down and you could see out of the side windows, but the sun did not shine in. In your state, if your allowed to have your car windows tinted, you might ask your doctor for a prescription to have them tinted (but not on the front window, - not allowed). I'm hoping these tips might make you more comfortable. Oh - don't be a shame to wear dark glasses when needed while in lighted stores or even in the house on occasion. Good luck. Anita Croce, North Central District Director, BEBRF |
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Posted by: Deanna, New York City ® 12/02/2008, 13:52:22 |
Hi Bob, I'm still in the beginning stages of Botox (trying to get the right placement, amount, etc.). However, regarding light sensitivity, I bought polarized sunglasses (6 layers of polarization - is that a word?) for $205! I've never spent more than $20 on sunglasses, but these really help with sun, light, etc. I also tinted my reading glasses so the florescent lights in my office are less bothersome. Hope this helps.
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