Posted by: Lyn Patterson ®
01/14/2003, 17:00:55
Author Profile Mail author
|
Hi KathyYes, it all sounds very exciting, doesn't it. With a permanent or semi-permanent 'botox' or whatever, one would REALLY have to trust one's
doctor to get it right the first time ! Lyn
|
Posted by: Kathy in Oregon ®
01/14/2003, 21:20:57
Author Profile Mail author
|
geez, Lyn , i was wondering if anyone else noticed this!!!!!
I am wondering if the blood protein Dr. Scott is referring to is the albumen we have been discussing , and also with the success of the anticholergenic drug Parsitran , if they are following up on this. The other grants also look like they might be onto something major. Would someone else please reply on this. I mean it actually looks like some people are really trying to find a cure for this!!
|
Posted by: Nancy MacDonald ®
01/15/2003, 08:55:05
Author Profile Mail author
|
Hello all,
Yes isn't it exciting The thought that we might be on the edge of a cure for this frustating condition.I am the one who has had albumun and we are going on 12 weeks. I am just about ready to call the doctor for my next set of shots. I hope he will be able to duplicate that last set of shots. It was a wonderful holiday. I was driving on occasion and I was able to use computer. It was great. They are still open but there is a lot of mouth grimacing with it. Oh well it was great while it lasted. Lets hope that this is the answer.See ya Nancy
|
Posted by: Kelly Saffell ®
01/15/2003, 09:21:18
Author Profile Mail author
|
I missed the part about the anticholergenic drug Parsitran (or is it Parsitan?). I take Parsitan from Canada and it has helped some. Not enough to make me anywhere close to normal, but I am also only on 1/3 or the dose since it makes me tired. Interested in reading about the drug but I had to skim the newsletter this time around.
Kelly
|
Posted by: Kathy in Oregon ®
01/16/2003, 13:33:25
Author Profile Mail author
|
No, the parsitan(?) wasn't mentioned but since it is anticholergenic in the way it must effect the particular neurons involved , maybe they are following up on this particular muscle and nerve reaction.
|
Posted by: Delaine Inman ®
01/16/2003, 10:13:38
Author Profile Mail author
|
Yes the good news is it sounds promising for treating the symptoms permanently, but wouldn't treat the cause and you'd better hit the right spots so who does those injections better be the best. Whatever the results, you're stuck with it. Cutting the muscles for the limited upper myectomy taught me that.My eyelashes do not curl up anymore, they point straight down and can sometimes poke me in the eye. I'm stuck with that.
|
Posted by: Kathy in Oregon ®
01/16/2003, 13:36:26
Author Profile Mail author
|
My eyelashes point down also and i haven't had surgery and after much going without mascara and having that situation worsen , MASCARA to the rescue! making my eyelashes go up so they don't poke me, washable, of course.
|
Posted by: Delaine Inman ®
01/16/2003, 14:06:09
Author Profile Mail author
|
I've tried that trick and it ends up in my eyes and makeing things worse. I can't even get them up or straight out with anything.
|
Posted by: Ann Doyle ®
01/16/2003, 14:17:07
Author Profile Mail author
|
I'm taking it for granted you tried an eyelash curler. Ann Doyle
|
Posted by: Delaine Inman ®
01/16/2003, 18:24:55
Author Profile Mail author
|
Oh Yeah. Hard to put them in when they are growing down. I usually pull more out than I get in curler.
|
Posted by: Kathy in Oregon ®
01/17/2003, 10:21:01
Author Profile Mail author
|
Now , I think those are really dangerous and bad for your eyes and lashes.
|
Posted by: Kathy in Oregon ®
01/17/2003, 10:19:32
Author Profile Mail author
|
mascara, it really helps me or else they seem to turn more under which is extremely uncomfortable!
|
Posted by: Kelly Saffell ®
01/16/2003, 14:41:52
Author Profile Mail author
|
I haven't had surgery but botox makes my eyelashes on the inner corners of my eyes turn under. A couple of weeks after every injection, I can feel them poking me and Aron gets out his penlight and tweezers and plucks them out. I started wearing dark eyeliner and no mascara and my eyes don't feel as scratchy.
|
Posted by: Delaine Inman ®
01/16/2003, 19:34:03
Author Profile Mail author
|
Maybe it is the Botox and not the surgery, but I didn't notice it until after the surgery and I'd been getting Botox for a year. I hope that if I can ever stop getting the Botox the lashes will look more normal. They certainly don't change as the Botox wears off.
|
Posted by: Kathy in Oregon ®
01/17/2003, 10:25:17
Author Profile Mail author
|
Mine used to return to normal but they don't anymore. I think it may depend on where you get the injections.
|
Posted by: carolyn smith ®
01/16/2003, 20:34:08
Author Profile Mail author
|
Can't believe that anyone else has problems with their eyelashes going the wrong way. I never have said anything to anyone about my weird lashes and how the bottom right lashes curl up and I have to get tweezers and pluck them. I have none now right in the middle of the lid. I thought maybe that was just me. Carolyn in cold windy Plano, Tx
|
Posted by: Kelly Saffell ®
01/16/2003, 22:18:06
Author Profile Mail author
|
Hey Carolyn - windy is right! Will you be there on Sunday? Hope to see you soon. That is interesting that your lashes do the same thing. Mine drive me nuts. Feels like something is poking me in the eye - I guess it IS poking me in the eye. Maybe we should ask Dr. Itani at the meeting?!
|
Posted by: Kathy in Oregon ®
01/17/2003, 10:28:56
Author Profile Mail author
|
That IS one of the reasons we have this support group and bulletin board. There are lots of things that i have learned here that help me feel not alone in the quirky things that botox can do.
|
Posted by: Delaine Inman ®
01/17/2003, 10:53:06
Author Profile Mail author
|
I'm glad I mentioned it, because I was blaming it on the surgery and here I find out people who haven't had surgery have the same problem. It is a relief to find out that other people have the same sort of weird things going on.......makes you feel less weird. That is why I love this BB.
|
Posted by: Lyn Patterson ®
01/16/2003, 21:12:48
Author Profile Mail author
|
Yes,I also have eyelash problems and usually end up plucking some out. I haven't worn eye makeup for years and really miss it. Lyn
|
Posted by: Delaine Inman ®
01/17/2003, 10:49:49
Author Profile Mail author
|
I've met Aaron and believe me, you'd let him pluck your eyelashes. Kelly has a wonderful, talented and hunky husband. He is a nurse and a fireman and could do his own calendar (for charity of course.) Kelly is beautiful and talented and could do her own calendar, too, so they are the perfect match......both personality plus as well. Two gorgeous little girls, sweet as pie and how could they not be?
|
Posted by: Kelly Saffell ®
01/17/2003, 13:09:48
Author Profile Mail author
|
You are so sweet. My hunky husband is in New York right now. The girls and I bought him the trip for Christmas after he made the 9/11 firefighter memorial that got alot of media attention here in Dallas. He is there with his Anchorage firefighter brother. I have to tell you what happened on his way there on Wed. He had a layover in Atlanta and went to grab dinner at Wendys at the airport. He had his ticket in hand waiting for them to call his number to pick up his order. When he checked his number he couldn't believe it - 343 - the number of New York firefighters killed on 9/11.
|
Posted by: joanne matuzas ®
01/17/2003, 16:47:21
Author Profile Mail author
|
Kelly, that's wonderful and the trip to NY will be as well. My brother is a firefighter in New York and was directly involved with the 911 crisis. As a matter of fact, they all recently had to have a medical checkup to be sure their lungs are clear since some of the men have had some symptoms and problems in that regard. He and his wife also spent much time attending some of the memorials of the 343 firefighters lost. It's been life-changing for them both. Joanne M. San Diego, CA
|
Posted by: Ann Doyle ®
01/17/2003, 17:33:02
Author Profile Mail author
|
I used to complain about having thin hair and hardly any eyelashes. I guess there are more importand things in life. Humbled and Proud of it. Ann Doyle--modified by Ann Doyle at Fri, Jan 17, 2003, 17:35:39
Modified by at Fri, Jan 17, 2003, 17:35:41
|
Posted by: Kathy in Oregon ®
01/18/2003, 10:47:06
Author Profile Mail author
|
I am sure it was!! i think it was lifechanging for anyone that lives in the U.S. as well , granted not on so intense a level. I certainly know my anxiety level has increased!
--modified by Kathy in Oregon at Sat, Jan 18, 2003, 10:47:55
Modified by at Sat, Jan 18, 2003, 10:47:57
|
Posted by: Kelly Saffell ®
01/18/2003, 18:17:39
Author Profile Mail author
|
Aron is coming home tonight and had the opportunity to visit with alot of firefighters. He heard stories that the public will never hear. He had told me a while back that alot of firefighters weren't able to return to duty due to lung problems. I hope your brother is healthy and has been able to heal physically and emotionally from that horrible day.
Kelly
|
Posted by: ClaireW ®
01/17/2003, 14:31:53
Author Profile Mail author
|
Until I had Botox i could get my eyelashes dyed/tinted. Now my eyes aren't closing all the way and I'm worried the solution will get in my eyes. I find that I can't wear mascara either. my lashes are so short and pale it looks as if I have none! I WISH I COULD WEAR MASCARA AGAIN.....(stamp of of little feet!)
Claire...who is going for lipstick and bronzer big style!
|
Posted by: Kathy in Oregon ®
01/18/2003, 10:50:51
Author Profile Mail author
|
You are very funny! actually , on a desert island, it would be lipstick for me , with creme blush as a second neccessity, but he masacara helps with downward turning lashes.
|
Posted by: ClaireW ®
01/18/2003, 12:01:57
Author Profile Mail author
|
Funny ha ha, or funny peculiar...actually i am for certain both...still it's better than being SAD!
Much love to you,
Claire and the Cats!
|
|
